As of March 23, 2026, the three largest insider holders of RARE are Emil D Kakkis (President Ceo, 2.16Mn shares), Emil D Kakkis (President Ceo, 658.99K shares), Thomas Richard Kassberg (Cbo Evp, 264.73K shares).
| Holder | Position | Shares (Direct) | Shares (Indirect) | Report Date |
|---|---|---|---|---|
| Emil D Kakkis | President Ceo | 0 | 2,158,985 | 04 Mar, 2025 |
| Emil D Kakkis | President Ceo | 658,994 | 0 | 03 Mar, 2026 |
| Thomas Richard Kassberg | Cbo Evp | 264,730 | 0 | 04 Mar, 2025 |
| Dennis Karl Huang | See Remarks | 124,729 | 0 | 03 Mar, 2026 |
| John Richard Pinion | See Remarks | 110,026 | 0 | 03 Mar, 2026 |
| Erik Harris | Evp Chief Commercial Officer | 89,515 | 0 | 03 Mar, 2026 |
| Howard Horn | Chief Financial Officer | 85,034 | 0 | 03 Mar, 2026 |
| Eric Crombez | Evp And Chief Medical Officer | 76,301 | 0 | 03 Mar, 2026 |
| William Aliski | 66,849 | 0 | 28 Jun, 2021 | |
| Karah Herdman Parschauer | Evp And Chief Legal Officer | 66,820 | 0 | 10 Mar, 2026 |
| Mardi Dier | Cfo Executive Vice President | 66,695 | 0 | 17 Oct, 2022 |
| Theodore Alan Huizenga | Svp, Chief Accounting Officer | 48,670 | 0 | 03 Mar, 2026 |
| Camille L Bedrosian | Evp And Chief Medical Officer | 46,720 | 0 | 03 Mar, 2023 |
| Michael Narachi | 32,690 | 0 | 19 May, 2025 | |
| Daniel G Welch | 32,690 | 0 | 19 May, 2025 | |
| Deborah Dunsire | 30,815 | 0 | 19 May, 2025 | |
| Matthew K Fust | 25,945 | 0 | 19 May, 2025 | |
| Shehnaaz Suliman | 25,940 | 0 | 19 May, 2025 | |
| Amrit Ray | 23,365 | 0 | 19 May, 2025 | |
| Lars Ekman | 17,745 | 0 | 28 Jun, 2022 | |
| Corazon (Corsee) D. Sanders | 15,344 | 0 | 23 Jun, 2025 |
* Please note that the shares above only reflect shares from the fund portfolio and the institutional portfolio. Shares from the personal portfolio are excluded from this Institutional Ownership Page. See these insiders' latest transactions here on Insider Page.
| Transaction Date | Insider Name | Security Class | Transaction Type | Shares Traded | Price | Shares Remaining | Ownership | Code |
|---|---|---|---|---|---|---|---|---|
| 06 Mar, 2026 | Karah Herdman Parschauer | Common Stock | D | 6,018 | $21.40 | 70,328 | D | S |
| 10 Mar, 2026 | Karah Herdman Parschauer | Common Stock | D | 3,508 | $22.67 | 66,820 | D | S |
| 01 Mar, 2026 | John Richard Pinion | Common Stock | A | 11,137 | $0.00 | 119,565 | D | A |
| 01 Mar, 2026 | Dennis Karl Huang | Common Stock | A | 11,137 | $0.00 | 125,728 | D | A |
| 01 Mar, 2026 | Erik Harris | Common Stock | A | 11,643 | $0.00 | 99,498 | D | A |
| 01 Mar, 2026 | Karah Herdman Parschauer | Common Stock | A | 11,137 | $0.00 | 84,408 | D | A |
| 02 Mar, 2026 | Theodore Alan Huizenga | Common Stock | D | 148 | $23.39 | 50,302 | D | F |
| 01 Mar, 2026 | Emil D Kakkis | Common Stock | A | 71,177 | $0.00 | 712,908 | D | A |
| 01 Mar, 2026 | Eric Crombez | Common Stock | A | 11,643 | $0.00 | 83,173 | D | A |
| 01 Mar, 2026 | Howard Horn | Common Stock | A | 6,143 | $0.00 | 95,078 | D | A |
| 02 Mar, 2026 | Erik Harris | Common Stock | D | 10,539 | $22.80 | 89,515 | D | S |
| 02 Mar, 2026 | Emil D Kakkis | Common Stock | D | 54,404 | $22.80 | 658,994 | D | S |
| 02 Mar, 2026 | Dennis Karl Huang | Common Stock | D | 999 | $23.39 | 124,729 | D | F |
| 02 Mar, 2026 | John Richard Pinion | Common Stock | D | 10,029 | $22.80 | 110,026 | D | S |
| 02 Mar, 2026 | Howard Horn | Common Stock | D | 5,290 | $22.80 | 89,788 | D | S |
| 02 Mar, 2026 | Theodore Alan Huizenga | Common Stock | D | 1,632 | $22.80 | 48,670 | D | S |
| 02 Mar, 2026 | Eric Crombez | Common Stock | D | 7,029 | $22.80 | 76,301 | D | S |
| 02 Mar, 2026 | Karah Herdman Parschauer | Common Stock | D | 8,135 | $22.80 | 76,346 | D | S |
| 02 Mar, 2026 | Howard Horn | Common Stock | D | 3,119 | $22.54 | 86,669 | D | S |
| 03 Mar, 2026 | Howard Horn | Common Stock | D | 1,635 | $22.40 | 85,034 | D | S |