As of May 14, 2026, the three largest insider holders of RARE are Emil D Kakkis (President Ceo, 2.22Mn shares), Emil D Kakkis (President Ceo, 2.16Mn shares), Emil D Kakkis (President Ceo, 735.74K shares).
| Holder | Position | Shares (Direct) | Shares (Indirect) | Report Date |
|---|---|---|---|---|
| Emil D Kakkis | President Ceo | 0 | 2,223,985 | 05 Sep, 2024 |
| Emil D Kakkis | President Ceo | 0 | 2,158,985 | 04 Mar, 2025 |
| Emil D Kakkis | President Ceo | 735,739 | 0 | 20 Apr, 2026 |
| Thomas Richard Kassberg | Cbo Evp | 264,730 | 0 | 04 Mar, 2025 |
| Dennis Karl Huang | Evp Chief Tech Ops Officer | 147,845 | 0 | 20 Apr, 2026 |
| John Richard Pinion | - | 133,142 | 0 | 20 Apr, 2026 |
| Erik Harris | Evp Chief Commercial Officer | 118,410 | 0 | 20 Apr, 2026 |
| Howard Horn | Chief Financial Officer | 115,025 | 0 | 20 Apr, 2026 |
| Eric Crombez | Evp And Chief Medical Officer | 110,975 | 0 | 20 Apr, 2026 |
| Karah Herdman Parschauer | Evp And Chief Legal Officer | 95,715 | 0 | 20 Apr, 2026 |
| Theodore Alan Huizenga | Svp, Chief Accounting Officer | 68,911 | 0 | 24 Apr, 2026 |
| Mardi Dier | Cfo Executive Vice President | 66,695 | 0 | 17 Oct, 2022 |
| Camille L Bedrosian | Evp And Chief Medical Officer | 46,720 | 0 | 03 Mar, 2023 |
| Michael Narachi | - | 32,690 | 0 | 19 May, 2025 |
| Daniel G Welch | - | 32,690 | 0 | 19 May, 2025 |
| Daniel G Welch | - | 32,690 | 0 | 19 May, 2025 |
| Daniel G Welch | - | 32,690 | 0 | 19 May, 2025 |
| Deborah Dunsire | - | 30,815 | 0 | 19 May, 2025 |
| Matthew K Fust | - | 25,945 | 0 | 19 May, 2025 |
| Shehnaaz Suliman | - | 25,940 | 0 | 19 May, 2025 |
| Amrit Ray | - | 23,365 | 0 | 19 May, 2025 |
| Lars Ekman | - | 17,745 | 0 | 28 Jun, 2022 |
| Corazon (Corsee) D. Sanders | - | 15,344 | 0 | 23 Jun, 2025 |
* Please note that the shares above only reflect shares from the fund portfolio and the institutional portfolio. Shares from the personal portfolio are excluded from this Institutional Ownership Page. See these insiders' latest transactions here on Insider Page.
| Transaction Date | Insider Name | Security Class | Transaction Type | Shares Traded | Price | Shares Remaining | Ownership | Code |
|---|---|---|---|---|---|---|---|---|
| 22 Apr, 2026 | Theodore Alan Huizenga | Common Stock | A | 20,241 | $0.00 | 68,911 | D | A |
| 22 Apr, 2026 | Theodore Alan Huizenga | Common Stock | A | 20,241 | $0.00 | 68,911 | D | A |
| 22 Apr, 2026 | Theodore Alan Huizenga | Common Stock | A | 20,241 | $0.00 | 68,911 | D | A |
| 22 Apr, 2026 | Theodore Alan Huizenga | Common Stock | A | 20,241 | $0.00 | 68,911 | D | A |
| 22 Apr, 2026 | Theodore Alan Huizenga | Common Stock | A | 20,241 | $0.00 | 68,911 | D | A |
| 22 Apr, 2026 | Theodore Alan Huizenga | Stock Option (Right to Buy) | A | 7,348 | $0.00 | 7,348 | D | A |
| 22 Apr, 2026 | Theodore Alan Huizenga | Stock Option (Right to Buy) | A | 7,348 | $0.00 | 7,348 | D | A |
| 22 Apr, 2026 | Theodore Alan Huizenga | Stock Option (Right to Buy) | A | 7,348 | $0.00 | 7,348 | D | A |
| 22 Apr, 2026 | Theodore Alan Huizenga | Stock Option (Right to Buy) | A | 7,348 | $0.00 | 7,348 | D | A |
| 22 Apr, 2026 | Theodore Alan Huizenga | Stock Option (Right to Buy) | A | 7,348 | $0.00 | 7,348 | D | A |
| 16 Apr, 2026 | Erik Harris | Common Stock | A | 28,895 | $0.00 | 118,410 | D | A |
| 16 Apr, 2026 | Emil D Kakkis | Common Stock | A | 76,745 | $0.00 | 735,739 | D | A |
| 16 Apr, 2026 | Karah Herdman Parschauer | Common Stock | A | 28,895 | $0.00 | 95,715 | D | A |
| 16 Apr, 2026 | Eric Crombez | Common Stock | A | 34,674 | $0.00 | 110,975 | D | A |
| 16 Apr, 2026 | Howard Horn | Common Stock | A | 34,674 | $0.00 | 115,025 | D | A |
| 16 Apr, 2026 | Dennis Karl Huang | Common Stock | A | 23,116 | $0.00 | 147,845 | D | A |
| 16 Apr, 2026 | John Richard Pinion | Common Stock | A | 23,116 | $0.00 | 133,142 | D | A |
| 16 Apr, 2026 | Dennis Karl Huang | Stock Option (Right to Buy) | A | 79,936 | $0.00 | 79,936 | D | A |
| 16 Apr, 2026 | John Richard Pinion | Stock Option (Right to Buy) | A | 79,936 | $0.00 | 79,936 | D | A |
| 16 Apr, 2026 | Erik Harris | Stock Option (Right to Buy) | A | 49,960 | $0.00 | 49,960 | D | A |