RARE's three largest insider shareholders as of September 29, 2026 are Emil D Kakkis (President Ceo, 2.22Mn shares), Emil D Kakkis (President Ceo, 2.16Mn shares), Emil D Kakkis (President Ceo, 735.74K shares).
| # | Insider | Position | Direct | Indirect | Total | Share of Insiders | Last Filed |
|---|---|---|---|---|---|---|---|
| 1 | Emil D Kakkis | President Ceo | 735,739 | 0 | 735,739 | 34.5% | 20 Apr, 2026 |
| 2 | Thomas Richard Kassberg | Cbo Evp | 264,730 | 0 | 264,730 | 12.4% | 04 Mar, 2025 |
| 3 | Dennis Karl Huang | Evp Chief Tech Ops Officer | 147,845 | 0 | 147,845 | 6.9% | 20 Apr, 2026 |
| 4 | John Richard Pinion | Officer | 133,142 | 0 | 133,142 | 6.2% | 20 Apr, 2026 |
| 5 | Erik Harris | Evp Chief Commercial Officer | 118,410 | 0 | 118,410 | 5.6% | 20 Apr, 2026 |
| 6 | Eric Crombez | Evp And Chief Medical Officer | 111,189 | 0 | 111,189 | 5.2% | 06 May, 2026 |
| 7 | Howard Horn | Chief Financial Officer | 96,295 | 0 | 96,295 | 4.5% | 04 Aug, 2026 |
| 8 | Karah Herdman Parschauer | Evp And Chief Legal Officer | 92,562 | 0 | 92,562 | 4.3% | 04 Aug, 2026 |
| 9 | Theodore Alan Huizenga | Svp, Chief Accounting Officer | 67,863 | 0 | 67,863 | 3.2% | 15 Sep, 2026 |
| 10 | Mardi Dier | Cfo Executive Vice President | 66,695 | 0 | 66,695 | 3.1% | 17 Oct, 2022 |
| 11 | Camille L Bedrosian | Evp And Chief Medical Officer | 46,720 | 0 | 46,720 | 2.2% | 03 Mar, 2023 |
| 12 | Daniel G Welch | Director | 40,441 | 0 | 40,441 | 1.9% | 18 May, 2026 |
| 13 | Michael Narachi | Director | 40,441 | 0 | 40,441 | 1.9% | 18 May, 2026 |
| 14 | Deborah Dunsire | Director | 38,566 | 0 | 38,566 | 1.8% | 18 May, 2026 |
| 15 | Matthew K Fust | Director | 33,696 | 0 | 33,696 | 1.6% | 18 May, 2026 |
| 16 | Amrit Ray | Director | 31,116 | 0 | 31,116 | 1.5% | 18 May, 2026 |
| 17 | Shehnaaz Suliman | Director | 27,951 | 0 | 27,951 | 1.3% | 18 May, 2026 |
| 18 | Corazon (Corsee) D. Sanders | Director | 21,095 | 0 | 21,095 | 1.0% | 15 Jun, 2026 |
| 19 | Lars Ekman | Director | 17,745 | 0 | 17,745 | 0.8% | 28 Jun, 2022 |
Each row is that insider’s most recently reported position, from Form 4 filings over the last 60 months — which is why this total does not tie to the quarterly series above, where a quarter counts only the insiders who filed in it. Shares held through a fund or institutional portfolio are counted on the institutional ownership page instead.
| Date | Insider | Position | Transaction | Shares | Price | Value | Shares Held After | Ownership |
|---|---|---|---|---|---|---|---|---|
| 03 Sep, 2026 | Theodore Alan Huizenga | Svp, Chief Accounting Officer | Disposed S | 161 | $13.99 | $2.25K | 69,146 | Direct |
| 03 Aug, 2026 | Karah Herdman Parschauer | Evp And Chief Legal Officer | Disposed S | 1,900 | $24.92 | $47.35K | 92,562 | Direct |
| 03 Aug, 2026 | Howard Horn | Chief Financial Officer | Disposed S | 4,696 | $24.92 | $117.02K | 96,295 | Direct |
| 01 Jul, 2026 | Howard Horn | Chief Financial Officer | Disposed S | 4,698 | $33.13 | $155.64K | 100,991 | Direct |
| 15 Jun, 2026 | Corazon (Corsee) D. Sanders | Director | Disposed S | 2,000 | $25.05 | $50.10K | 21,095 | Direct |
| 15 Jun, 2026 | Karah Herdman Parschauer | Evp And Chief Legal Officer | Disposed S | 1,899 | $24.62 | $46.75K | 94,462 | Direct |
| 01 Jun, 2026 | Howard Horn | Chief Financial Officer | Disposed S | 4,653 | $23.77 | $110.60K | 105,689 | Direct |
| 14 May, 2026 | Corazon (Corsee) D. Sanders | Director | Acquired A | 7,751 | $0.00 | $0 | 23,095 | Direct |
| 14 May, 2026 | Shehnaaz Suliman | Director | Acquired A | 7,751 | $0.00 | $0 | 33,691 | Direct |
| 14 May, 2026 | Matthew K Fust | Director | Acquired A | 7,751 | $0.00 | $0 | 33,696 | Direct |
| 14 May, 2026 | Daniel G Welch | Director | Acquired A | 7,751 | $0.00 | $0 | 40,441 | Direct |
| 14 May, 2026 | Deborah Dunsire | Director | Acquired A | 7,751 | $0.00 | $0 | 38,566 | Direct |
| 14 May, 2026 | Amrit Ray | Director | Acquired A | 7,751 | $0.00 | $0 | 31,116 | Direct |
| 14 May, 2026 | Michael Narachi | Director | Acquired A | 7,751 | $0.00 | $0 | 40,441 | Direct |
| 14 May, 2026 | Corazon (Corsee) D. Sanders | Director | Acquired A | 14,058 | $0.00 | $0 | 14,058 | Direct |
| 14 May, 2026 | Daniel G Welch | Director | Acquired A | 14,058 | $0.00 | $0 | 14,058 | Direct |
| 14 May, 2026 | Amrit Ray | Director | Acquired A | 14,058 | $0.00 | $0 | 14,058 | Direct |
| 14 May, 2026 | Michael Narachi | Director | Acquired A | 14,058 | $0.00 | $0 | 14,058 | Direct |
| 14 May, 2026 | Deborah Dunsire | Director | Acquired A | 14,058 | $0.00 | $0 | 14,058 | Direct |
| 14 May, 2026 | Matthew K Fust | Director | Acquired A | 14,058 | $0.00 | $0 | 14,058 | Direct |